Warning, this is going to be a long post so, bear with me.
This last week was one of the most stressful weeks I have had. It wasn't stressful because of lots to do it was stressfull because of my sweet little Ethan. I tell ya, this kid keeps us on our toes around here, literally. So, if any of you have been reading my blog you know that Ethan has had some problems with digestion and we thought the problem was cured with soy. Well, we were wrong. Ethan, back in May, spit up a little bit of blood and ofcourse, I feaked out, and we were in the doctors right away. Our pediatrician examined Ethan and said overall he looks good, but this is now out of my scope and we need to refer you to a pediatric GI. He gave me a name and number of a highly recommended doctor in the East Valley and when I called I was told there was a 3-4 month WAIT! Are you kidding me? My little guy is only 2 1/2 months and you're telling me I have to wait 3-4 months, I couldn't believe it.I said ya okay, and called my pediatrician back. To make a long explanation short, he put us on the "urgent" wait list, which was 3 weeks. Oh my heavens! I would think they would try to get a baby spitting up blood in a little sooner than that, but I guess not. A few weeks passed and we were doing good. Ethan has always had a hard time sleeping and is pretty fussy after he eats, so we figured as long as he wasn't spitting up blood we were okay. Ryan and I have decided to do some research on our own and we came across GERD's (Gastroesophogeal Reflux Disease, pretty much reflux)and we read it and said this is Ethan to a T. After researching out GERD's we figured this is just something we are going to have to endure through and hopefully he will out grow it. Well, just when we came to that conclusion Ethan decided on Monday he was going to throw a curve at us and spit up quite a bit more blood than before. Okay, so let me explain this blood. On Monday it looked like raspberry syrup with seeds. It was very strange, but we knew it was blood because Ethan is only drinking white formula. You could also see that his spit up had red streaks in it when normally it's white. Anyway, so I have to say at that point I was very stressed and worried about our little guy. This is just not normal and we need to get this figured out. Ofcourse, it was during lunch time and no doctor's offices were open. I did get ahold of the Pediatric GI office and they said they couldn't do anything for him because he wasn't an existing patient, I just don't get it. So, I called our pediatrician and had him paged during lunch and he had us come right in. I brought Ethan's onsie with me so they didn't think I was crazy and while we were with the doctor he called Dr. Schenkein (the Pediatric GI) and left her a personal "urgent" message to please call him back. So, home we went and we were to watch him closely and wait to hear when we could get in with this doctor. I have to say, all night Monday I just prayed and asked that we could please find answers for our little guy. Low and behold Tuesday morning at 7:53am I received a call from Phoenix Children's Hospital (Where Dr. Schenkein's office is) and they had us in at 10:50 that morning. Oh, was I relieved. We were at the appointment for 2 hours. Dr. Schenkein was awesome and I am so grateful for her and her concern for Ethan. She listened to us and gave us all her attention. She was very concerned about Ethan and wanted to get him in right away for an upper endoscopy. For those that don't know what it is it is where they put a scope (camera) down his esophagus, into his stomach and into the duodenum. They would be checking for ulcers, irritation and were also going to do byopsy's along the way to check for a severe allergy. She tried getting us in that afternoon, but scheduling wouldn't do it. She really wanted to do the procedure and so we ended up having to wait until Thursday morning. She tried everything to get us in sooner, but couldn't. So the procedure was scheduled for Thursday morning at 7:30am, we had to be at Phoenix Children's at 5:30am. Wednesday was a LONG night for us and I was so worried about Ethan. They were going to have to put him out using anesthesia and that worried me the most. You never know how a babies body will respond and the whole thing just broke my heart. I feel so bad for him and I just wish that he would feel better and not be so uncomfortable. The procedure went great. It took about 1/2 hour and we were back with Ethan before we knew it. I just have to say waiting in the waiting room for a 1/2 hour was hard and I couldn't imagine waiting longer. We did have a family that entertained us very well with their 2 year old TRIPLET boys, and a 4 year old brother. They had a brother Ethan's age in surgery. Oh, we sat there and counted our blessing that we have only 1 cute, sweet, energetic, talkative little 2 year old. Props to that couple, I just admired them and we had some great chats as the triplets where jumping on couches, taking pillows off, playing with the fire extiguisher thing on the wall and just being cute 2 year old boys, we loved it and thanks for the entertainment. Anyway, back to Ethan. We went back with him in recovery and he was screaming. That's when I began to cry. I was holding strong all throughout and then I broke. It took him probably a good hour to come out of the anesthetic and then I was able to console him. It was so hard. I cannot explain it in words except it just broke my heart. All I did was hold him, give him lots of kisses, talked to him and sang him songs. Oh, it was hard, but I couldn't have done it without my other half. Ryan, I love you so much and you were and always are my strength. Thank you for being such a fabulous, loving, husband and father. I love you lots. By 9:30am we were in the car headed home. We were so glad that we didn't have to get admitted and that Ethan was good enough to come home. The results of the upper endoscopy where that they saw irritation, a few red dots in the duodenum that they biopsied and they also took a few other biopsy's. Last minute the doctor decided to do a flexible sygmoid oscopy (like a colonoscopy)and take a few biopsy's there also. We have not received any results back and are hoping to get them back this week. So, I guess you can pretty much tell what I did for the days following. Ethan and I sat on the couch watched movies and tried to sleep. I ended up watching sad movies that I didn't know were sad and that didn't help the situation, but that's okay. I just got to cry more because I obviously hadn't cried enough. Our sweet Hollie had a fun week at the Skousen's house (KC's in-laws). Oh, I don't know what I would have done without them. Thank you so much for being there for us and playing with Hollie, I know she had a blast because she continues to talk about Dallin, Jeffrey, Kathryn and Kimberly. You taught her lots of good things and Ryan and I swear she matured and grew 2 feet.
As of today Monday, June 23rd Ethan is doing good. He has his moments, but he is sleeping now and that's a good thing. Sleeping during the day has been challenging and he LOVES waking up between 4:30 and 5:00am!! Yes, the Larson's like to start Early so don't feel bad if you call us at 7am, our morning is already half way over, haha. Oh, I just love him and I enjoy those moments where I can hold a sleeping, peaceful baby.
Oh, some good news to add to this post. Ethan, who doesn't like laying on his back, decided on Saturday morning to roll from his back to his stomach. We are so proud of him and are glad that he is still growing and developing normal. He is right on track with his sister. And.... we also went to the juvenille court to sign our petition to adopt Ethan and it's looking like it will be finalized the end of September beginning of October, HURRAY!!!!!! We love to share that exciting news.
This is just for me, but I want my sweet little Ethan to know how much I love him and how grateful I am for him. I couldn't imagine my life without him. He is the little man that we have always wanted and complete's our cute little family. I love you Ethan and I promise we will get you feeling better soon.
What a Week!!
Posted by Kerri
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4 comments:
HI KERRI, I AM SO GLAD YOU POSTED ABOUT THIS. I HAVE BEEN TEXTING SHANEN'S EAR OFF WONDERING HOW THE BABY IS. I AM SORRY YOU HAVE TO WAIT SO LONG TO FIND OUT WHAT IS GOING ON! IT IS SO HARD TO SEE A BABY IN PAIN AND HAVING TO PUT THEM UNDER IS HORRIBLE.
WE HAVE KEPT YOUR FAMILY IN OUR PRAYERS!
LET US KNOW THE OUTCOME!
You have had quite the journey with your little guy! Hopefully the doctor will have some results you all can work with to get him feeling better. I will touch base with you soon.
I have to say reading your blog almost made me cry. It brought back memeories of Derens surgery. Two years later I can cry just thinking about it. I hope this can all be taken care of soon. It would be nice to know that Ethan is feeling better.
Hi Kerri, I just read the whole story about Ethan! I am so sorry that he (and your family too!) is suffering so much. That is scary that he was spitting up blood. I hope that all will soon be well. Thanks for giving me your blog address. I like checking people's blogs, it is always so fun to hear what everyone is up to! Take Care! Give Hollie a hug from us!
Much Love, Chris
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